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From hope to despair...

So, five days on the melatonin is not working and CAMHS want her to stop :(

After the TAC and all the positive support from her future school, therapist and autism outreach, CAMHS want to get social services back involved in the misguided belief I'll get a larger personal budget to pay for extra care and home help...

I an AU where the bubble didn't burst and we didn't have a misguided govt, an AU where Keynes and Brown are respected and understood rather than the mad faith in 'the market'...

Why is it I use the same coping strategies of every other parent with a kid on the spectrum but I'm criticized for it?

Because I don't have a husband and own home? Is the wheelchair, the council house, the benefits, the single parentness? Because I have more bleeping qualifications then most of those who patronize me, but Oxford degrees in social sciences don't count when you're a cripple in social housing on welfare, you must have had a brain transplant and be thick...

Or maybe it's just because she's a girl, therefore she can't be that aggressive, that difficult, that far on the spectrum?

Don't know, but I'm fed up with having to justify my parenting because I'm ill with mobility problems and my daughter is autistic. Meanwhile, other kids are neglected and abused every day by nice, middle class parents and social services do nothing...

I know what will happen. We'll be assessed, patronized, criticized and then told there is nothing in the budget to assist in 'my parenting role'... Been there, done that, worn the T-shirt so many times before...

Probably writing Lewis/Hathaway fanfic is in some way not right in a parent too, if letting her fall asleep eventually downstairs to Lewis DVDs is wrong!  Because we all live in la la land where a nice bath, hot milky drink, bed time story and strict routine will get her to sleep just like she's neurotypical, because that never crossed my mind in the last 12 years, did it?

Comments

( 3 comments — Leave a comment )
dare_dreamer
Jun. 11th, 2011 10:07 pm (UTC)
I can complete understand what you are going through. I myself have been through the rigger with CAHMS and know what it feels like to have a disabled family member who you care about. I haven't got a disabilty but my father has and at times I have neglected my self to care for him.
I suggest to you that you do what ever it is t help relieve the stress you fill. If its writting SLASH then slash away. I myself find writting helps.

AND REMEMBER THAT YOU ARE A FANTASTIC MOTHER. THIS POST IS EVIENCE ENOUGH OF THAT FACT.
asparagusmama
Jun. 11th, 2011 11:03 pm (UTC)
Thank you so much for your encouragement. I try my best, but when you're with CAMHS or social workers or headteachers they just pick out the negatives, which may only be 5% but that's all they see... well, that and my wheelchair, making all kinds of assumptions - having ME, the wheelchair saves my energy to care for her in the home, it doesn't mean I'm incapable in the home!!!

I really need praise sometimes, so thank you so much for your kind comment.

I just finally got her still and asleep with her new favourite - stories of Hathaway aged 12. Not sure if I'll bother writing these and sharing though :)
dare_dreamer
Jun. 12th, 2011 11:57 am (UTC)
You are most certainly welcome. Us fans, writters and carrers must stick together.
We should get hats and badges that say that. :-)xx
( 3 comments — Leave a comment )

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