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At last!!!

It is 0145 GMT and neither BK and I are not asleep due to ill health/pain/vertigo/delete as appropriate plus anxiety and worry. The wheelchair taxi to take us to the JR is booked for 0715 GMT!!! After all the long waits, the guesses, disagreements on possible diagnosis and transfers and generally not having a clue, being too busy to let us or the GP know, and then the consultant being seriously ill, we are off to see the 'ENT House' to hopefully figure out what is wrong with BK. What if he hasn't a clue? While making a list of all of her sympotoms I find out she has had a stabbing pain in the ear and temple all the time but has not yet mentioned it to me, the GP, register, nurse or technician during the tests!!! She didn't think it important, it was just there. NO ONE had asked her before - 'do you have a pain in your ear?' How typically autistic. I only hope as well as an expert in unexplained vertigo that this doctor knows enough about autism to not dismiss the sudden mention of pain after 15 months as a NT teen looking for attention and not take her seriously.

(my own health has been very, very poor - owlbsurfinbird - I missed your birthday :( So sorry. I hope you had a fantastic day xxx)

So please, whatever your beliefs, positive vibes, positive thoughts, good wishes, prayers, asking the universe, reiki, white spells, anything, just sent it BK's way for this morning from 0900GMT onwards. Thank you x


( 8 comments — Leave a comment )
Mar. 4th, 2015 04:07 am (UTC)
oh dear! big hugs to you and BK - hopefully this will get you some answers, or at the very least some sort of action.

Mar. 6th, 2015 02:59 pm (UTC)
Thank you :) *hugs back* No answers but a possible action plan at least. At first I felt so negative about the outcome, he was horrible, it wasn't just sleep deprivation that made me feel that, but I think the therapist he has referred is a good outcome - after all, the orginal doctor wanted that back in may and they refused on her age. They can't refuse this doctor, so that, at least, is good. Who cares what causes it if she gets well?

Mar. 4th, 2015 10:52 am (UTC)
Oh, you poor thing, it is so difficult to shut off your brain when it starts that endless loop of worry and always at a time when you need sleep more than usual!
Desperately hoping things are going/have gone well and you have some answers, possibly even solutions.
Up til 5am with an overactive mind as things have been 'interesting' here recently, wish I'd seen this message then.
Hugs and prayers and fingers crossed.
Mar. 6th, 2015 03:03 pm (UTC)
I know :(

I'm not sure about the outcomes, to be honest. when I have more energy I might message you about his nasty, old fashioned attitude (patronising and patriarchal) as you have more experience with children/teens that might present differently and doctors and ME, if you see what I mean!

Don't worry, I curled up with cocoa and Doctor Who in the end :) it was bad though, as I only ended up with an hour's sleep, but I did dose in the taxi, which was a long while, the traffic was choked! Oxford and its surrounds are a sea of roadworks currently. Wish we could airbrush it all out like Lewis do :)

Thanks xxx
Mar. 4th, 2015 05:40 pm (UTC)
I hope you finally, finally, found some answers and have now an action plan to get BK back to health.

All the best
Mar. 6th, 2015 03:05 pm (UTC)
Thank you. No answers, but an action plan. I'm just worried how long it will take to initialise - JR ENT secretaries seem to take forever!

Thanks again :)
Mar. 4th, 2015 11:38 pm (UTC)
Really hope you got good answers today xx
Mar. 6th, 2015 03:06 pm (UTC)
No answers, but if the offered therapy removes the symptoms and she gets her life back, maybe we don't need to know the cause?

Thank you xx
( 8 comments — Leave a comment )



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