asparagusmama (asparagusmama) wrote,
asparagusmama
asparagusmama

PIP Appeal

My daughter didn't get PIP, seemingly coz she was there when she didn't go when she was 16. The judge back then said if she had gone he'd have given more points.
She didn't get it coz she pushes through disabling and crippling autism confusion and anxiety and severe vertigo and pain despite needing back up. If she sat in her room and never tried to engage (and was male too I bet) she'd have got it and if spent it all on weed and computer games and stayed in her room she'd have got it. Coz she tries and pushes herself and masks she didn't. And all the medical experts said she masks and hides her symptoms. The system punishes you for trying to over come your disabilities.
PIP now and she pays taxes for life later, no PIP and what, she's on ESA for life? What kind of fucked up system is that? (Mind you, same as school, give her the support and she'd have been great, but no, too much money to spend on her needs, better to lie about her needs and blame the mum as she is handily in a wheelchair)
She needs help washing and dresses a couple of times a week. She doesn't wash the rest of the time and wears same clothes day in, day out. She is at risk of falls and stumbling inder a car on the pth every time she is out of the house. She falls inside the house. She is anxious and afraid and does not undertand every moment she is out. She can't cook or remember to feed herself or manage her medication or therapy. She mostly can't bathe or wash her hair due to pain and risk of falls.
But coz she showed up to the appeal and coz she is going to college she is functioning fine. Apparently. Even if the care and support she needs is literally killing me by degrees which I willinginly give coz that's what Mums do. And if she didn't have needs she would be looking after me, not making me sicker, coz that's what children gladly do for their mothers. That's what families do, they love and support each other.
No love in the world can pay for transport and care and extra needs and therapy. No love in the world can get me out of the serious fucking debt I will be in now.
Come what may we will get her through the BTEC somehow, even if it kills me.
We are not in a good place right now. Only fear of hell is keeping us here
Tags: afraid, angry, autism, benefits, cognitive dysfunction, daughter, depressed, desperate, disability, disability rights, disabled rights, hopelessness, human rights, ill health, insulin resistance, love my daughter, money, my country is ruined, need a hug, neurology, no money, no safety net, pip appeal, politics, scary, stress, stressed, terrified, vertigo
Subscribe
  • Post a new comment

    Error

    Anonymous comments are disabled in this journal

    default userpic

    Your reply will be screened

    Your IP address will be recorded 

  • 4 comments